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The Western Australian Paediatric Bronchiectasis Program

Bronchiectasis is a condition where the lungs become damaged and prone to infections.

Individuals with bronchiectasis can develop chronic wet cough, experience “flare ups” that require time spent in hospital and have reduced quality of life. Our understanding of bronchiectasis is less developed than that of other lung disease, such as asthma and cystic fibrosis.

We established the Western Australian Paediatric Bronchiectasis Program to understand how bronchiectasis develops, what causes ‘flare ups’, which treatments are most effective, and to improve the lives of children living with bronchiectasis.

Community involvement

Telethon Kids Institute and Perth Children's Hospital researchers are looking for members of the community to join the Western Australian Paediatric Bronchiectasis Consumer Reference Group. This group is for parents and carers of children who have bronchiectasis. We want the group to be involved with:

Supporting the development of partnerships between consumers, researchers, Telethon Kids Institute and Perth Children’s Hospital.
Providing a consumer perspective to both medical and research aspects of bronchiectasis.
Advising about research and clinical priorities, practice, and policies.
Improving the quality and relevance of research and clinical activities through consumer involvement

More information about the Western Australian Paediatric Bronchiectasis Consumer Reference Group is available on this flyer.

Get involved